Use of this website constitutes your acceptance of the following

Acceptance of terms and conditions
Your access to and continued use of the Pemphigus & Pemphigoid Society website (website) constitutes your acceptance, without limitation, of these terms and conditions, in their current form or as modified. The Pemphigus & Pemphigoid Society reserves the right to change these terms and conditions at any time, without notice to you, and you must consult the most recent version of this User Agreement (not an older cached version) each time you view the website.

Copyright notice
All website design, text, graphics, coding, scripting, the selection and organization thereof, and all custom software used in the delivery, operation or presentation of the Pemphigus & Pemphigoid Society site is Copyright © 2003, 2004,, 2005, ALL RIGHTS RESERVED by the Pemphigus & Pemphigoid Society. Unless otherwise indicated said materials are protected by the copyright laws of the United States of America and may not be copied, reproduced, transmitted, displayed, performed, distributed, sublicensed, altered, stored for subsequent use or otherwise used in whole or in part in any manner without the Pemphigus & Pemphigoid Society's prior written consent. Any reproduction or distribution, except for personal, informational use on one's personal computer of files, is a violation of our copyright. Any resale of this information or use for commercial gain is prohibited, except in accordance with the Pemphigus & Pemphigoid Society licensing agreement.

No material may be modified, edited or taken out of context such that its use creates a false or misleading statement or impression as to the positions, statements or actions of the Pemphigus & Pemphigoid Society. We avidly protect our Copyrights, Trademarks and the use of our Domain Name to the fullest extent of the law. Be advised that we will prosecute infringement.

Unauthorized reproduction, by photocopying or otherwise, constitutes copyright infringement in violation of 17 U.S.C. SS 501. Under the Federal Copyright Act, 17 U.S.C. SS 504 and 505, an infringer can be held liable for substantial damages to the copyright owner, as well as attorneys' fees and costs. Willful copyright infringement for the purpose of commercial advantage or private financial gain is a federal crime under 17 U.S.C. SS 506t and 18 U.S. C. SS 2319.

Content disclaimer
This site does not provide medical advice. The Content provided is not intended as a substitute for professional medical advice, diagnosis, or treatment. You should always consult a licensed healthcare provider for these purposes, or for any specific, individual medical advice. Never disregard professional medical advice or delay in seeking it because of something you read on this site.

While The Pemphigus & Pemphigoid Society makes reasonable efforts to include accurate and up-to-date information on our website, the information you access through this site is provided "AS IS" and without warranty, express or implied. The Pemphigus & Pemphigoid Society makes no warranty as to the reliability, accuracy, timeliness, usefulness or completeness of any information accessed through our site. The Pemphigus & Pemphigoid Society assumes no liability or responsibility for any errors or omissions in the content of this site. To the fullest extent permissible pursuant to applicable law, The Pemphigus & Pemphigoid Society disclaims all express or implied warranties related to this site, included but not limited to implied warranties or merchantability and fitness for a particular purpose.

The Pemphigus & Pemphigoid Society cannot and does not warrant that the functions or information contained in The Pemphigus & Pemphigoid Society website will be uninterrupted or error-free, or that defects will be corrected. The Pemphigus & Pemphigoid Society cannot and does not warrant against human and machine errors, omissions, delays, interruptions or losses, including loss of data. The Pemphigus & Pemphigoid Society cannot and does not guarantee or warrant that files available for downloading from this online site will be free of infection or viruses, worms, trojan horses or other code that manifest contaminating or destructive properties.

The Pemphigus & Pemphigoid Society has not reviewed all of the sites that may be linked to The Pemphigus & Pemphigoid Society website, and is not responsible for the content of any linked pages or any other websites linked to our site. Your access of any off-site content linked to this site is at your own risk.

The Pemphigus & Pemphigoid Society does not endorse, support, sanction, or verify the information or material that is provided on this site or linked to this site. Unless otherwise specifically indicated, the Pemphigus & Pemphigoid Society has no affiliation with any of the organizations mentioned or described on the website, and it makes no representations or warranties with regard to those organizations. All copyrights belong to their owners.

You acknowledge that the opinions and recommendations contained on this website are not necessarily those of the Pemphigus & Pemphigoid Society or endorsed by the Pemphigus & Pemphigoid Society.

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Response to Comments Disclaimer
The Pemphigus & Pemphigoid Society appreciates hearing from you. All efforts will be made to respond to your comments, but the Pemphigus & Pemphigoid Society cannot guarantee it will do so. Any response will be for informational or educational purposes only and will not constitute medical advice. The Pemphigus & Pemphigoid Society makes no warranties, express or implied, about the information in these responses.

Jurisdiction
This Website (excluding linked sites) is controlled by the Pemphigus & Pemphigoid Society which is headquartered in the State of California, United States of America. It can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of California, by accessing this website both you and the Pemphigus & Pemphigoid Society agree that the statutes and laws of the State of California, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this website.

The Pemphigus & Pemphigoid Society makes no representation that materials on the website are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this website from other locations do so on their own initiative and are responsible for compliance with local laws.

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We value your privacy

We share your concern about protecting privacy and we make this promise:

The officers and staff of the Pemphigus & Pemphigoid Society will never sell, rent, trade or otherwise make available to any third party any information which might identify you, our member, without your consent for any reason other than to satisfy a court order.

The personal information we keep on our members is limited and required to conduct our mission. For example, we keep your address in our database so we can send you our news magazine.

We do, on occasion, publish general statistics or the results of patient polls, but we will not publish anything which might identify any particular member.

We track "hits" on our site and compile standard log files to measure the site's traffic. The information we collect is used to improve the content and performance of our website and is not shared with other organizations.

The information you choose to disclose in messages sent to us or posted to our Message Boards is completely up to you. We will use the information you send us to respond to your inquires and we will use our best efforts to keep your name and medical history confidential by taking appropriate security measures, but absolute security can never be assured.

Those wishing to remain anonymous when using the PPS Message Boards may use the fictitious screen name (alias) feature available on our Message Boards. You may prefer not to reveal your personal or work email address to other members of the group, (we strongly recommend you do not), in which case you should utilize the internal email service specifically installed for this kind of correspondence.

Because our privacy policy may be updated periodically, we encourage you to review these pages on a regular basis.

We, the officers and staff of the Pemphigus & Pemphigoid Society, want you to feel totally confident that we are doing all we can to protect you and your personal information. If you ever have a question or concern about privacy, please inform us promptly.

Thank you.

Sal Capo
President/Executive Director

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Welcome to the Pemphigus & Pemphigoid Society Message Boards.

Access to the Boards is limited to members of the Society and registered guests.

This is a place for patients and caregivers to share their thoughts, feelings and experiences with each other. Online support groups have been shown to have beneficial effects for patients and caregivers and we are confident that our Message Board will be of great value to our members.

A few ground rules are in order.

Soliciting funds for any purpose other than the PPS is expressly forbidden.

Messages are not screened prior to posting to this forum. It is impossible to verify the information posted, so we cannot warrant the accuracy, completeness or value of any message. Each message expresses the views of the author of the message and not necessarily the views of the Pemphigus & Pemphigoid Society.

Remarks which are defamatory, abusive, vulgar, hateful, harassing, obscene, profane, or threatening are not welcome here. We may notify the Internet Service Provider of anyone posting seriously objectionable messages or in way are harassing our members.

Any user who feels a posted message is objectionable should contact the Board Moderator by email.

By using the Pemphigus & Pemphigoid Society Message Boards and chat rooms, members agree not to post any material which is knowingly false, inaccurate, invasive of a person's privacy or otherwise in violation of any law. Messages sent privately should not be posted to the group without the express permission of the author of that message. No message posted on the message board or in a chat room can be posted anywhere else in any form whatsoever.

Discussions in this forum can not be considered a substitute for medical advice from a licensed professional. Members are strongly urged to discuss with their health care providers any changes to their medical regimen before changes are made. Everyone using this message board has a unique medical situation and history, lifestyle and medical goals. The technique or product works for one patient may not work for another.

Any medical personnel or licensed professional posting to our board do so as private persons. Without knowing your medical history and without the benefit of firsthand examination and comments or suggestions they make cannot be considered medical advice and no doctor-patient relationship exists.

Any information you post is done so voluntarily on your part. If you do not wish to be identified, use a screen name (alias) and keep your personal information private. Exposing any one else's identity without their expressed permission will result in disciplinary action and possible removal from the group and/or the Society.

We discourage members from posting phone numbers or addresses. If you wish to private email messages from other PPS Message Board users use the internal email system provided for this purpose. However, the PPS retains your email address in our database and reserve the right to have Pemphigus & Pemphigoid Society staff contact you. You are required to submit and keep a currant and valid email address, and other contact information, with the PPS.

You are solely responsible for the content of your messages, and you agree to indemnify and hold harmless the Pemphigus & Pemphigoid Society, its officers and staff or any member with respect to any claim based upon transmission of your message(s).

You agree not to post any copyrighted material unless the copyright is owned by you, except as permitted by the "fair use" provisions of the copyright laws (in general this means VERY brief excerpts only).

We respond promptly to claims of copyright infringement and to the best of our ability we will remove the material in question and take the appropriate steps to prevent occurrences in the future.

If you believe any material on this website infringes on copyright protected property, please bring this material and all pertinent information to the attention of the Message Board Administrators immediately.

Advertisements, chain letters, pyramid schemes and solicitations are not permitted. Anyone who makes a testimonial for a product, service, technique or the like, and has any financial or other relationship which may be considered a conflict of interest, must state that relationship clearly in the message where the testimonial is made.

Only one screen name (alias) per member is permitted. If you need to change your screen name contact the Message Board Moderator. This may take some time to accomplish. Use of someone else's, or a false or multiple screen name(s) is not permitted and may result in loss of posting privileges under ANY name. We reserve the right to refuse to allow screen names we find objectionable.

Pemphigus & Pemphigoid Society, reserves the right to reveal your identity (or whatever information we know about you) in the event of a court order.

By posting on this board you grant the Pemphigus & Pemphigoid Society, a nonexclusive irrevocable right to reuse your posting, or the information it contains, in any manner deemed fit by us without notice or compensation to you, unless it identifies you personally.

Please remember two things: 1) that messages on this board are visible to any member of the Pemphigus & Pemphigoid Society, and are retained in a database indefinitely. So don't say something which will embarrass you later; and 2) remember that we have a very wide range of people on this board so please be careful of what you say.

We have members from many races, cultures, religions, political views, and economic levels with varying degrees of sensitivity.

Messages on prayer, religion and politics routinely spark arguments, so they are expressly forbidden.

You agree to abide by the wishes of the Message Board Moderators and Administrators or the Executive Director in interpreting and enforcing these rules. Refusal to cooperate with a Message Board Moderator, Administrator, the PPS staff or Board of Directors is grounds for revocation of posting privileges.

Please remember that you are a guest here, and that we reserve the right to exclude you at our whim, for any or no reason whatsoever. By registering and using the board you acknowledge this right and agree to abide by our rules and to submit to their interpretation and enforcement by our Executive Director, Director of Communications and/or the Board of Directors.

These standards and procedures may change at any time so please review them regularly.

If you have questions or comments, we would like to hear them, please contact us.

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